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EPISTEME

International Journal of Applied Social and Human Scienes

ISSN(Print) : 1976-9660

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EPISTÉMÈ Vol.32 pp.185-232
Discourses on X regarding newborn screening : A source of inequality?
G. Brachotte1†
1 A lecturer in information and communication sciences at the CIMEOS laboratory, University of Burgundy
A. Barrot1†
1 A doctoral student at the CIMEOS laboratory, University of Burgundy.
A. Frame1†
1 A professor in communication at the TIL laboratory at the University of Burgundy.
J. Fraga1†
1 PhD in information and communication sciences from the University of Burgundy, CIMEOS laboratory.
C. Level1†
1 A research engineer in health economics at the genetics center of Dijon University Hospital,
D. Salvi1†
1 A research engineer in health economics at the genetics center of Dijon University Hospital.
L. Faivre1†
1 a professor. She's head of the medical genetics department at Dijon University Hospital, and coordinates the TRANSLAD University Hospital Federation
F. Huet1†
1 Paediatrician at the university hospital of Dijon (France).
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Abstract

This article analyses the discussions on extended newborn screening (eNBS) broadcast on X (formerly Twitter) in France. It explores the impact of these discussions on the social acceptability of eNBS, a technological advance enabling rare genetic diseases to be detected at birth. The study, carried out over six years, reveals that institutional messages, although numerous, struggle to reach a wide audience due to their low visibility and the influence of political and ideological players. The latter sometimes hijack public health discourse for identity or conspiracy purposes, reinforcing mistrust of health policies. Despite increased awareness, key issues such as France's lag behind other European countries and inequalities in access remain little addressed. The article highlights the importance of better-targeted communication campaigns to counter malicious rhetoric and increase public support, particularly at a time when genetic technologies hold out the promise of major advances in public health.
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